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First Name :   Holly URL :    Comment :   Sally, thank you for the really sweet words, and i really feel for you and your son too. Hes been suffering for too long! God bless him and you too, and thanx again. First Name :   Sally URL :    Comment :   I really feel for you, my son has been battling this disease since he was 16 he is now 28. I have seen what he has been thru and my thoughts and prayers go to everyone who has to deal with this. God Bless and Keep You First Name :   Holly URL :    Comment :   Kathie, thank you so much for the sweet words, and God bless you in your journey! Thanx for your email, ill be writing you asap. Your cystine sister, Holly First Name :   Holly URL :    Comment :   Gerry, thank you so much for the awesome words, Wow, youve been suffering way too long! I hope you can get some consistent care soon, and Gods love to ya! First Name :   Kathie URL :    Comment :   WOw way to go Holly, Your work is fantastic. My name is Kathie i am in Australia please feel free to contact me anytime on kath_australia@yahoo.com GOD BLESS US ALL signed your cystine sister Kathie B (Australia) First Name :   gerry URL :   propercharles@yahoo.co.uk Comment :   Very interesting.You have created a very helpful text.I am awaiting Cistenuria diagnosis having had stones since age seven. (51 now) I have travelled a lot and consequently never had continuation of care.Anyway well done and good health to you. First Name :   Lucia URL :    Comment :   Hello Holly, you can write me at lucia198016@libero.it We can talk about our stories. Im a christian and Jesus has saved me 6 years ago. I was born in a christian family. God bless you !! First Name :   Holly URL :    Comment :   Lucia, Thank you for the sweet words :), and may God bless you also as you deal with your cystinuria. Thank you for stopping by the guestbook! First Name :   Lucia URL :    Comment :   Hi, im an italian girl with cystinuria. God bless your life. First Name :   Holly URL :    Comment :   are a blessing to me also :) First Name :   Holly URL :    Comment :   Joyce, thank you for all your kind words, and wordys the way we like it!! Your pastor sounds like a real blessing, and im glad the Lord led you to this site so you could find some help. May God conitnue to bless and keep you and your family too and YOU ar First Name :   Joyce URL :    Comment :   to others. (Sorry, my sons say I am way too wordy) lol First Name :   Joyce URL :    Comment :   (I forgot what you said about the message cutting off) Anyway, with the swelling in my stomach (Im also overweight) I figured it could be anything. Now Im looking at kidneys as a source. At any rate may God bless, keep and HEAL you as you are a blessing t First Name :   Joyce URL :    Comment :   Hello Holly, I was looking for some info on Doans pills when I happened upon your site. My daughter is 23 and seems to have always had kidney problems. I was in church last night and my pastor prayed for the swelling in my stomach and mentioned kidneys First Name :   Holly URL :    Comment :   Jacob, thank you for the awesome words, you have really made my day :):) Im sorry to hear about all your stone attacks, you will be in my prayers of course.Thx again! First Name :   Jacob URL :    Comment :   Thank you for such a great site! What a blessing! I have been suffering with kidney stones for the past year (one attack a month), and am 21 years old. When I saw this site, I was extremely excited, and then when I found out it was composed by a fello First Name :   Holly URL :    Comment :   Krystal, its nice to meet you! Its great talking with someone my own age who has this as well. Id love to email. Ill contact you asap :) Have a great day! First Name :   Krystal URL :    Comment :   Hello Holly! I am also a cystinuric and 22 as well. It would be nice to talk to someone my age that knows what I am going through. Feel free to email me kfajardo84@yahoo.com First Name :   Holly URL :    Comment :   Melinda, thank you for the wonderful words, and im glad the site was so helpful to you!! Im sorry to hear about your sons diagnosis, i hope things continue to go well and you will be richly blessed. God bless your family! First Name :   Melinda URL :    Comment :   Holly, Thanks so much for putting all this info together in one place. My 11 year old son was recentely diagnosed with cystinuria and we are coping pretty well and it helps to have one place to go to get some basic information - especially from one who h First Name :   Holly-Moderator URL :    Comment :   Welcome to the Guestbook! Older posts are in the guestbook archives. Leave your thoughts, and i will rap with each and every one of you! Have a great day :)Note:If your post goes over so many words, it will cut off. Plz continue in a new post to finish.

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First Name :   Holly URL :    Comment :   Cindy, thank you so much for the very sweet words, and im glad the site was so helpful to you :) you really touched me :) I hope your friend gets alot of help and continues to get better! God bless! First Name :   cindy URL :    Comment :   thank you so much for the wealth of information you have put together to help others. You are a wonderful, thoughtful human being. I am passing along this info to my good friend who has experienced over 25 stones with surgical intervention. He started at First Name :   Holly URL :    Comment :   Melissa, thank you for the very sweet words, and im glad you like the site so much! Im glad i can connect w/ other people like you, and hear were doing the same things like the hot tub :) Youre welcome,and take care, u will be in my prayers! First Name :   Melissa URL :    Comment :   Holly- I have really enjoyed your sight- many of these things I truly live by such as the hot tub!! Thanks for placing this out there to tell people what we really go through each and everyday!!! First Name :   Holly URL :    Comment :   JC, thank you for all the sweet words, and im glad you will be making good use of the site!! :) Im glad the group has a hold of it, and will continue to help many more. Thanx again! First Name :   jchorleyukk@yhoo.co.uk URL :    Comment :   eep my visits as high as my fluid in take!! Thanks Holly First Name :   jchorleyukk@yahoo.co.uk URL :    Comment :   My word what a wonderful site. It was passd to me by a fellow menmbre of cystinuria-support-network@yahoogroups.com so im sure there will be many more of us accessing in the near future. I am just about read out at the moment but i intend to make sure i k First Name :   Holly URL :    Comment :   ...Thx again, you will be in my thots & prayers First Name :   Holly URL :    Comment :   David, Thank you for the kind words,and im so glad the site is helpful to you! Im sorry to hear about all your troubles with stones, 5 or 6 ER visits is 6 times too many!!! I hope the morphine is helping, as i know how hard it is to kill stone pain :/ con First Name :   David URL :    Comment :   Diagnosed with kidney stones 3 months ago, been thru ER 5 or 6 times since then, needing morphine for the pain. I have several stones seen by ultrasound today, so while the docs decide what to do, I have discovered your site - thank you, it is brilliant, First Name :   Holly URL :    Comment :   (Baking soda might help soften em a bit)God bless you too, and thanx for the website with your beautiful horses! First Name :   Holly URL :    Comment :   Peg,Thank you for the sweet words, and thank you for sharing your story!Im so sorry about these stones cropping up,i will be praying for ur decision in the matter.Maybe there is some way they can break or dissolve them without surgery- (cont.) First Name :   Peg URL :   http://members.tripod.com/~PAINTS/OkspaintsHomeindex.html Comment :   My cystinuria has been a sleeping giant and has now awoken. I have a 7mm and an 11mm stone and doctors are arguing over what to do with them. I dont have a clue. Your site is great and informative. God bless. First Name :   Holly URL :    Comment :   Emma, thank you for the sweet words, they really mean alot :) Im glad you liked the humor in it, i wouldnt have it any other way :) God bless you in your journey, and thanx for stopping by! First Name :   Emma URL :    Comment :   Thanks so much for taking the time to write this informative website, thanks also for the humor which is so needed in the lives of sufferers of this disease! First Name :   Holly URL :    Comment :   Mr. Bill, thank you for sharing your story! You are an inspiration! First Name :   MrBill URL :   mrbill1033@thevillages.net Comment :   Im 72, had the First One with renal colic about 40 years ago. About 20 years ago a staghorn developed in Right Kidney. Opted not to have surgery. Recently got in trouble with dehydration. Docs got me back in shape and now Im waiting evaluation to determin First Name :   Holly URL :    Comment :   cont.-like that again. God bless First Name :   Holly URL :    Comment :   Charlie,thank you for your nice compliments, & thank you for shar- ing your story! You & the nurse are right in saying its worse than childbirth, & who says men dont know childbirth pain huh?!! And worse!! I sincerely hope you never have to have a bout l First Name :   Charlie URL :    Comment :   I just happened upon this site, and it was so nice to hear you describe the pain. I am obviously a guy, and I had a bad bout of kidney stones about 6 years ago at age 18. The female nurse that was assigned to my room said the pain is worse than childbirth First Name :   Holly URL :    Comment :   ponnusamikasithangarajan,thank you for the nice compliments, & im glad you found it so informative. keep up the dreams about a site of your own,we need all the info we can get! God bless you and your ventures,Holly First Name :   ponnusamikasithangarajan URL :   thanpath@yahoo.com Comment :   Excellent compilation..I,68yrs,being a sufferer craved to workout a site..Now I dropped the idea.Yours answers all queries;fully informative/educative. First Name :   Holly URL :    Comment :   Noelle, thank you for sharing your story, & i am so sorry to here about all the horrible things uv been going thru! Like the others, you are a brave soul & an inspiration, and i will be praying for you! First Name :   NOELLE URL :    Comment :   IVE JUST HAD A STENT PUT IN (6TH TIME) MY LEFT URETER FOLLOWING REMOVAL OF A 10MM STONE. I HAVE AT LEAST 42 MORE STONES VISIBLE ON CT SCAN, ONE OF WHICH IS 14MM. I HAVE HAD EXCRUCIATING PAIN AND COPIUS AMOUNTS OF BLOOD IN MY URINE AND WHEN I CALLED MY URO First Name :   Holly URL :    Comment :   Vals Mom, thank you for the wonderful compliment about the book! Im glad it was informative, and i hope Val will continue to get better-9 stones is one too many for a lifetime! I will be praying for you both First Name :   Vals Mom URL :    Comment :   Thanks for the really informative article - I think you have the basis for a good book. Was checking for my daughter - whos in her mid-20s, and has oxalate stones (her 9th stone recently passed), and I know how utterly painful these things can be. I hope First Name :   Holly URL :    Comment :   Hey Britnee, thank you for stopping by the clearinghouse! Enjoy yourself, and come back anytime! First Name :   Britnee URL :   ? Comment :   hi First Name :   Holly URL :    Comment :   Samantha, thank you for the kind words, and im so glad it helped you with your skool assignment, thats awesome! Ill give it an A+ :) Thanx again for the encouragement :) First Name :   Samantha URL :    Comment :   ur website is great! it really helped me with my skool assignment:) keep up the good work and i hope you get better. First Name :   Holly URL :    Comment :   Tracy,ive never tried it myself even tho id say yes! I, & many other with this are not able to work or keep up with others things. This disease is VERY disabling...i cant think of anything worse or more of a setback than this pain. Dont hesistate to apply First Name :   Tracy URL :    Comment :   Do we qualify for disability? First Name :   Holly URL :    Comment :   Tracy, thank you for sharing your story,you r an inspiration yourself! I am so excited to hear how much this site has helped you. God bless & prayers First Name :   Tracy URL :   tracymarier@hotmail.com Comment :   Like yourself I have pretty much had problems with this all my life with my first hospitalization at 14/15. Ive had about 15 procedures forthis cond. but after reading this site have learned more than all the years past. I see why I feel so crapy all the First Name :   Holly URL :    Comment :   Bill, you are so welcome, and thank you for stopping by the clearinghouse! And thank you for stopping by the guestbook, come again anytime-H First Name :   Bill URL :    Comment :   Thank you for sharing your pain for others to benefit from! First Name :   Holly URL :   Mod Comment :   Katie,thank you for your kind words,& im glad it was so helpful for ya! And hey,i totally understand about not finishing...too much too read at once! Enjoyed your website and pics, what a wonderful Christian witness! Thanx again! First Name :   Katie URL :   http://www.jnksansone.com/index.html Comment :   WOW! You sound like a book of meds and pain definitions and how to do and what not to do and man, what a lot of info! Thanks..couldnt even finish it all but very informative for all of us! Do come visit my sites and be blessed. Katie http://www.jn First Name :   Holly URL :    Comment :   Mariana, thanx for stopping by the clearinghouse! Glad you could stop by and thx for signing :) First Name :   Mariana URL :    Comment :    First Name :   Holly URL :    Comment :   cont. God bless you and Love! -H First Name :   Holly URL :    Comment :   Hey Haley, Thank you for the nice comments and im so glad you like the site! That means alot. I am so sorry to hear about your husband,he and you will be in my prayers as hes going thru this difficult time, and hope he doesnt have much pain and suffering First Name :   Hayley URL :   hayleyjg12@yahoo.com Comment :   Hi there What a fabulous website. My husband has just had his 3rd surgical operation to remove cystine stones and is in hospital recovering as we speak. You are an inspiration. Take care xx First Name :   Holly URL :    Comment :   Welcome to the guestbook! Feel free to post yout thought son the site here...be open, be honest, be nice! ;)

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